Eggs!  (different filter)

Eggs! (different filter)

Nathan got a few things from mom and dad last night for his birthday. …

Nathan got a few things from mom and dad last night for his birthday. …

Yesterday we stopped at Toys R Us, Nathan got a crown and balloon

Yesterday we stopped at Toys R Us, Nathan got a crown and balloon

Yesterday we stopped at Toys R Us, Nathan got a crown and balloon

Yesterday we stopped at Toys R Us, Nathan got a crown and balloon

Couldn’t find any birthday candles at Nana’s so we had to improvise. …

Couldn’t find any birthday candles at Nana’s so we had to improvise. …

Nathan requested cake, cheese, chips, and cheeseburgers for his birthday meal

Nathan requested cake, cheese, chips, and cheeseburgers for his birthday meal

Nathan’s birthday cake. ….I put the bird on and moved it and it fell lol

Nathan’s birthday cake. ….I put the bird on and moved it and it fell lol

Yesterday’s Audiology Appointment

If ya’ll ddn’t follow my instagram postings …  and you are following what’s going on with the kids, here is an update for you.  

Yesterday they both (Noah and Nathan) had an audiology appointment with their favorite audiologist Becky.   Well, things went well.  We only had one hiccup - er - bad news moment.  

Nathan’s left tube is blocked.  Apparently when he had the ear infection in the right ear back in February and he had all that smelly gross liquid coming out of his ear (which means the tube was working, expelling the infection) … apparently …..  he had one in the left ear also.  We were only told to put drops in his RIGHT ear - but no one told us that he needed to get the drops in the left ear also - and the ENT made a NOTE in his CHART saying his tube was blocked then.  We still don’t have a CLEAR idea on what his hearing loss TRULY is in his left ear because of this.  

Boy boys’ hearing tests showed that their hearing is stable (they still have loss, it just hasn’t gotten worse.) … They are the same as last time - pretty much.  Nathan’s left ear NEVER seems to be clear enough for a “good” test on it - so it’s worse than his right ear, still, at the moment.   Noah hears just fine out of his right ear, and his left ear has significant loss.  He doesn’t *like* to wear his hearing aid because he can hear out of his right one.  

Anyway - both boys got new ear molds made so that they can be sent out to the company to make new ear pieces for their hearing aids.  

Noah - picked out red, orange and black swirled

Nathan - picked out the dark blue, light blue, white w/ blue glitter for the left ear, and the same type of things for the right ear only it’s red, orange and white with red glitter.  

We’ll get them in the mail in 1 to 2 weeks and I’ll take pictures of how they turned out!  :)  

brtysboys:

You can’t only live a dream while you’re sleeping | via Tumblr on We Heart It - http://weheartit.com/entry/59173667

brtysboys:

You can’t only live a dream while you’re sleeping | via Tumblr on We Heart It - http://weheartit.com/entry/59173667


These are my kids  If you haven’t LIKED their page, please do so - I would greatly appreciate it (but you don’t have to) … but PLEASE take a couple minutes to SHARE THIS - I am going to try to start sharing stories on the page of other families and bring awareness to their stories! I am going to be doing this on their blog and the page! We need to get education and personal stories out there about these rare disorders!



PLEASE TAKE TWO SECONDS TO CLICK “SHARE” … and share to your page or your profile! We would greatly appreciate it! Help us get to 300 Likes on our page www.facebook.com/myuniqueflowersOur mission is to bring awareness over not only the rare conditions our kids have (Mosaic Trisomy 16, Russell Silver Syndrome) but also the common ones and bring awareness to a lot of medical conditions. We share our stories, we share our struggles and our accomplishments. We share a lot of graphics too, and I have all the graphics we share in the albums on our page (I take no credit for what I share, only what I make myself.) Plus share this on YOUR PAGE and ask your friends and family to like our page to help us accomplish our goal! Knowledge is power
These are my kids  If you haven’t LIKED their page, please do so - I would greatly appreciate it (but you don’t have to) … but PLEASE take a couple minutes to SHARE THIS - I am going to try to start sharing stories on the page of other families and bring awareness to their stories! I am going to be doing this on their blog and the page! We need to get education and personal stories out there about these rare disorders!
PLEASE TAKE TWO SECONDS TO CLICK “SHARE” … and share to your page or your profile! We would greatly appreciate it! Help us get to 300 Likes on our page 
www.facebook.com/myuniqueflowers
Our mission is to bring awareness over not only the rare conditions our kids have (Mosaic Trisomy 16, Russell Silver Syndrome) but also the common ones and bring awareness to a lot of medical conditions. We share our stories, we share our struggles and our accomplishments. We share a lot of graphics too, and I have all the graphics we share in the albums on our page (I take no credit for what I share, only what I make myself.) Plus share this on YOUR PAGE and ask your friends and family to like our page to help us accomplish our goal! Knowledge is power
kirakiradoodles:

Happy Easter everybunny! ⌒(。・x・。)⌒

kirakiradoodles:

Happy Easter everybunny! ⌒(。・x・。)⌒

(via damamadecros12202012)

I’m fairly new to tumblr and I don’t follow enough people with kids.

life-with-natasha:

Reblog/like if you’re a parent, expecting, ttc, or wttc so I can follow you. :)
My daughters are 1 & 4 and ttc #3.

(via renewinglauren)

After the day of driving on the rain, we had to stop to get meds, while DB wad inside I wad asking the kids what made rainbows because the sun was starting to shine bright behind us. … so Noah says “rain and Sun” and we were looking for rainbows. … when we went to leave the store we saw them. ..a double one at that! Always a blessing to see. …

After the day of driving on the rain, we had to stop to get meds, while DB wad inside I wad asking the kids what made rainbows because the sun was starting to shine bright behind us. … so Noah says “rain and Sun” and we were looking for rainbows. … when we went to leave the store we saw them. ..a double one at that! Always a blessing to see. …

Thanks to the traffic Nathan had a really tough time in the car, he keep asking to go home and we tried to explain to him that we were going home. … once we hit the big bridge he understood better that we were going home. … and then when we hit the Bremerton Ship Yard where the Dead Fleet (big decommissioned air craft carriers) …I pointed to it and asked Nate “what is that?” He yelled “big boats” ….I asked …”what’s that mean?” And he said “we’re almost home!”… hee hee

Thanks to the traffic Nathan had a really tough time in the car, he keep asking to go home and we tried to explain to him that we were going home. … once we hit the big bridge he understood better that we were going home. … and then when we hit the Bremerton Ship Yard where the Dead Fleet (big decommissioned air craft carriers) …I pointed to it and asked Nate “what is that?” He yelled “big boats” ….I asked …”what’s that mean?” And he said “we’re almost home!”… hee hee